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DTSTAMP:20260707T094828Z
UID:298afa42-fc51-4bdf-8a85-d9b4acccbb03
DTSTART:20241125T110000Z
DTEND:20241125T120000Z
DESCRIPTION:**Location**: Hybrid (Zoom and INESC Lisboa Room 09)\n\n**Speak
 er**: [Zoran Milosevic](https://www.linkedin.com/in/zorandmilosevic/)\n\n*
 *Abstract:**\n\nObtaining informed consent in bioinformatics research is c
 ritical\, but traditional paper forms hinder data use. This talk proposes 
 a novel approach utilizing HL7 FHIR\, a modern healthcare data exchange an
 d interoperability standard\, to support describing consent in a computabl
 e format. By leveraging a formal policy language\, we can express complex 
 consent terms concerning data access\, sharing\, and participant rights in
  a machine-readable format. This approach\, based on consumer data sharing
  preferences\, allows for automated consent enforcement and improved data 
 quality for downstream analyses.\n\nThe presentation will delve into our F
 HIR-based computable consent method\, demonstrated through a digital healt
 h use case focused on clinical trials.  \nWe'll showcase how FHIR resource
 s can support various consent elements\, including data access permissions
 \, sharing restrictions\, participant rights\, and obligations of provider
 s and third parties. We’ will conclude with a discussion with audience a
 bout potential applications for BioData.pt research and explore how this m
 ethod can contribute to ethical and efficient data management within the b
 ioinformatics landscape.\n\n[Click here to join Zoom meeting](https://vide
 oconf-colibri.zoom.us/j/92901496021?pwd=0z5tFw6obXoMJuf7YBbnHvZmOUXjpK.1)\
 n\n[Add to your calendar (downloads iCal file)](https://rgw03.tp.dsi.tecni
 co.ulisboa.pt/BioData-Backups/public/ics/biodatatalks_fhir.ics)
LOCATION:INESC\, 9 Rua Alves Redol
SUMMARY:Empowering Data-Driven Healthcare: A Formal Consent Framework Using
  FHIR
URL;VALUE=URI:https://biodata.pt/events/empowering-data-driven-healthcare-f
 ormal-consent-framework-using-fhir
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