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DTSTAMP:20260615T072417Z
UID:599103f1-7dba-4dea-a2d3-57f95038a80c
DTSTART:20230614T020000Z
DTEND:20230614T030000Z
DESCRIPTION:Australian human genome initiatives are generating vast amounts
  of human genome data to understand the cause of complex diseases\, improv
 e diagnosis / early disease detection and identify tailored treatment opti
 ons. \n\nTo achieve this\, genomic data needs to be compared between multi
 ple individuals and cohorts\, often across efforts/jurisdictions\, at nati
 onal or global scales\, and requires the genomic data to be findable\, sea
 rchable\, shareable\, and linkable to analytical capabilities.\n\nThe[ Hum
 an Genome Platform Project](https://www.biocommons.org.au/hgpp) aims to ma
 ke it as easy as possible to securely and responsibly share human genome r
 esearch data nationally and internationally. The project is building a ‘
 services toolbox’ that combines best practice technologies in human geno
 me data sharing.\n\nIn this webinar the project team will discuss two impo
 rtant aspects of human genomic data sharing\n\n1. the discovery of genomic
  cohorts and the GA4GH Beacon protocol that enables this functionality acr
 oss multiple sites\n2. the access management process whereby access to coh
 orts can be signed off by a responsible data access committees - and the R
 EMS software system in place at the Garvan for doing this\n\n**Speakers:**
 \n\nDr Christina Hall\, Associate Director Training and Communications\, A
 ustralian BioCommons\n\nDr Andrew Patterson\, Human Genomics Data Technolo
 gy Lead\, University of Melbourne\n\nMustafa Syed\, Bioinformatics System 
 Integration Manager\, Children’s Cancer Institute\n\nAssociate Professor
 \, Sarah Kummerfeld\, Director - Data Science\, Garvan Institute of Medica
 l Research\n\n**Who the webinar is for:**\n\nThis webinar is for people wh
 o are interested in implementation of a similar system for secure and resp
 onsible data sharing whether that be for genomics or other applications.\n
 \n**How to join:**\n\nThis webinar is free to join but you must register f
 or a place in advance.\n\n[Register here](https://unimelb.zoom.us/webinar/
 register/WN_dcRdDROyRquatiZhU6U7wQ)
SUMMARY:WEBINAR: Genomic data - improving discovery and access management
URL;VALUE=URI:https://www.biocommons.org.au/events/hgpp-webinar
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