BEGIN:VCALENDAR VERSION:2.0 PRODID:icalendar-ruby CALSCALE:GREGORIAN BEGIN:VEVENT DTSTAMP:20260616T125122Z UID:e8a883a2-39af-48b2-b93f-b5ed7693db9d DTSTART:20220405T090000Z DTEND:20220405T170000Z DESCRIPTION:This webinar\, part of the biocuration series\, will introduce the concept of sensitive data\, for example\, data relating to individual patients. It will also discuss how controlled data resources that contain sensitive data are able to archive and share the data with researchers\, and the best practices for assembling metadata for a rare disease submiss ion.\n\nTo give an example of how controlled data resources work\, the Eur opean Genome-phenome Archive (EGA) will be introduced. The EGA is a resour ce that archives and shares all types of personally identifiable genetic a nd phenotypic data resulting from biomedical research projects. The webina r will discuss why restricted access to the EGA’s data is required\, wha t information about the data can be viewed by anyone and how researchers c an gain access to the data they need. \n\nThis webinar is the fourth in [ our series of webinars on the topic of biocuration](https://www.ebi.ac.uk/ training/search-results?query=biocuration&\;domain=ebiweb_training_even ts&\;page=1&\;facets=type:Webinar\,year:2022). In an ELIXIR [survey ](https://f1000research.com/articles/9-1094) in 2019\, which aimed at iden tifying training needs in biocuration\, the most commonly indicated were p rogramming\, development and use of ontologies and database management. In addition skills like programming and extracting data from literature were mentioned as decisive for a successful biocuration career. With our webin ar series we want to help to close this gap: Bicourators from different ba ckgrounds and institutes will share their experience on how they have acqu ired these relevant skills in their job\, how they apply these in their wo rks and why they benefit from it. The speakers will also point to helpful tools and resources they use. LOCATION:\, SUMMARY:Working with sensitive data URL;VALUE=URI:https://www.ebi.ac.uk/training/events/working-sensitive-data END:VEVENT END:VCALENDAR