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BEGIN:VEVENT
DTSTAMP:20260618T083050Z
UID:4e6dd941-69c1-488a-8ef8-7f2e478c38f4
DTSTART:20220915T113000Z
DTEND:20220915T143000Z
DESCRIPTION:The European Genome-Phenome Archive (EGA) organise the Workshop
  **"Tools and techniques to make sensitive data discoverable (Use-cases\, 
 hands-on session of Beacon implementation)"** in the framework of the [21s
 t European Conference on Computational Biology](https://eccb2022.org/)\, w
 hich will take place in Sitges from the 12th to the 21st of September.\n\n
 One of the main bottlenecks in human genomics research is the lack of secu
 re and federated discovery of identifiable genomics data that requires tig
 ht privacy controls. This problem needs even more attention with the expan
 sion of genomics data in clinical application\, such as for medical diagno
 stic or prognostic purposes in rare diseases or cancer. \n\nThis workshop 
 aims to provide knowledge and hands-on sessions about the discoverability 
 of sensitive genomics and clinical data without jeopardizing the privacy o
 r ownership of such datasets. [European Genome-phenome Archive](https://eg
 a-archive.org/) along with [ELIXIR](https://elixir-europe.org/) and the [G
 lobal Alliance for Genomics and Health (GA4GH)](https://www.ga4gh.org/) ha
 s been involved to develop tools and techniques to tackle this challenge. 
 [Beacon](https://beacon-project.io/) recently became an approved GA4GH sta
 ndard for data sharing. Now\, anyone handling sensitive human dataset can 
 choose to ‘Beaconize’ their dataset and add it to Beacon network to ma
 ke their data discoverable.\n\nThe workshop has three objectives with foll
 owing sessions for the participants:\n\n- **Session I – Sensitive data c
 hallenges**. What makes data\, a sensitive data? Introduction to long-term
  secure archiving of all types of potentially identifiable genetic\, pheno
 typic\, and clinical data. Re-usuablity of datasets\, FAIR data principles
 \, public trust and policies on data governance.\n\n- **Session II – Bea
 con use case: Secure sharing of clinical genomics data by connecting diffe
 rent hospitals of Catalunya**. Bottlenecks of sensitive data sharing and d
 ata re-usability challenges\, how does it impact in real-life scenarios? P
 atient’s journey\, stories\, use-cases and Introduction to Beacon pilot 
 project launched to connect hospitals of Catalunya.\n\n- **Session III –
  Demo Beacon Implementation (BYOD: Bring your own dataset)**. Participants
  will learn how to make their sensitive data discoverable without jeopardi
 sing the privacy of such dataset through demo/hands-on training on Beacon 
 tool reference implementation (Documentation: http://docs.genomebeacons.or
 g/).
SUMMARY:WORKSHOP: Tools and techniques to make sensitive data discoverable 
URL;VALUE=URI:https://eccb2022.org/ntb-w06/
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