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Keywords: Rare Diseases & Research

and Competency level: Beginner

and Include disabled: true

4 materials found

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Lecture, Presentation, Training materials

HemaFAIR Lecture 7 - Ethical, Legal and Social Implications (ELSI) and Data Protection for Rare Disease Data

• Beginner
FAIR data Data management Open science FAIR principles Research Data Management Open Science Data sharing Data reuse Metadata European research projects …
course materials, e-learning

Eurordis Open Academy

• Beginner
Rare diseases Rare Diseases & Research Rare Diseases
educational materials, e-learning

Patient-Centered Outcomes Research Institute (PCORI) Training : A Program for Rare Disease Patient Advocates

• Beginner
Rare diseases Rare Diseases & Research
Webinar, e-learning

Integrated DEsign and AnaLysis of small population group trials (IDeAl)

• Beginner
Rare diseases Rare Diseases & Research Training material