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Keywords: Rare Diseases & Research

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36 materials found

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Lecture, Presentation, Training materials

HemaFAIR Lecture 7 - Ethical, Legal and Social Implications (ELSI) and Data Protection for Rare Disease Data

• Beginner
FAIR data Data management Open science FAIR principles Research Data Management Open Science Data sharing Data reuse Metadata European research projects …
e-learning

EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"

•• Intermediate
Rare diseases Rare Diseases & Research
course materials, e-learning

Eurordis Open Academy

• Beginner
Rare diseases Rare Diseases & Research Rare Diseases
Webinar, e-learning

Educational webinars on rare endocrine conditions (ENDO-ERN)

••• Advanced
Rare diseases Rare Diseases & Research
Webinar, e-learning

Educational webinars on rare and complex epilepsies (EpiCARE ERN)

••• Advanced
Rare diseases Rare Diseases & Research
Webinar, e-learning

Postgraduate Curriculum in Rare Kidney Diseases developed by ERKNet

••• Advanced
Rare diseases Rare Diseases & Research
Webinar, e-learning

Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)

•• Intermediate
Rare diseases Rare Diseases & Research
Webinar, e-learning

Rare and complex urogenital diseases and condition webinars (eUROGEN ERN)

••• Advanced
Rare diseases Rare Diseases & Research
Webinar, e-learning

Education and Training webinars on genetic tumor risk syndromes (ERN GENTURIS)

••• Advanced
Rare diseases Rare Diseases & Research
Video, e-learning

Educational videos on rare and low prevalence complex diseases of the heart (ERN GUARD-Heart)

••• Advanced
Rare diseases Rare Diseases & Research

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Training materials

HemaFAIR Lecture 7 - Ethical, Legal and Social Implications (ELSI) and Data Protection for Rare Disease Data

EJP RD MOOC "Diagnosing Rare Diseases: from the Clinic to Research and back"

Eurordis Open Academy

Educational webinars on rare endocrine conditions (ENDO-ERN)

Educational webinars on rare and complex epilepsies (EpiCARE ERN)

Postgraduate Curriculum in Rare Kidney Diseases developed by ERKNet

Webinars from the European Reference Network in Rare Hematological Diseases (EuroBloodNet)

Rare and complex urogenital diseases and condition webinars (eUROGEN ERN)

Education and Training webinars on genetic tumor risk syndromes (ERN GENTURIS)

Educational videos on rare and low prevalence complex diseases of the heart (ERN GUARD-Heart)